The FSHD Italian Registry has been developed for UNIMORE Miogen Lab as an open framework based on the open source EDC platform OpenClinica™ and the MOMIS Dashboard system for data search, analysis, and extraction to enable collaboration and information exchange for biomedical and clinical research.
Bio-bank databases and software are heterogeneous and not standardized: a complete information of a biological sample is fragmented through several disconnected data sources.
The platform provides a tool to take advantage of electronic data capture compliant with international regulatory guidelines and of a flexible, responsive tool to get real time insights of data, displayed in dynamic charts, tables and maps. It is possible to integrate other distributed sources to discover new information, using proper Big Data Analysis techniques to deal with complex analysis and to increase the information related to a single sample, also linking genomic and radiological investigations.
Main system features are: